Blog

Carolle Kithome-Kitonyi, Clinical Terminologist Specialist

Bridging the gap: Medical data standardization and data quality

In the ever-evolving healthcare landscape, one of the most pressing challenges clinicians and healthcare systems face is the seamless exchange of medical information. Accurate patient data and timely access is critical for delivering quality care, advancing research, and optimizing healthcare administration. However, the influx of local and proprietary medical codes has created a significant roadblock to achieving interoperability or data exchange.  This blog explores the critical issue of medical data standardization, the challenges associated with local or proprietary medical codes, and the far-reaching consequences for clinicians, patients, and communities. 

The Clinical Challenge 

Imagine a scenario where a patient presents in the emergency department with a complex medical history. Over the years, this patient has visited multiple healthcare facilities, each using its own set of codes and terminologies. As the attending clinician, your ability to make informed clinical decisions and provide the best care relies heavily on a comprehensive understanding of the patient’s medical history. This means having standardized, easy-to-interpret data. 

All too often, though, the information about this patient’s medical history might be fragmented, incomplete, misspelled, or unintelligible because healthcare data and codes aren’t standard. This issue is not unique to a hypothetical patient; clinicians across the globe encounter similar situations daily. These are the fundamental challenges clinicians face: 

  • Data Inaccuracy: Inconsistencies in local and proprietary medical codes can lead to errors in patient records. A simple code variation or an outdated code can cause misinterpretation and lead to potential patient harm.  
  • Data Fragmentation: When healthcare systems and data exchanges don’t communicate effectively and have code discrepancies, patient information becomes scattered across various databases, making it difficult for clinicians to access a comprehensive overview of a patient’s health history. 
  • Reduced Efficiency: Clinicians are often required to spend excessive time deciphering and cross-referencing codes instead of focusing on patient care. The added administrative burden overloads the clinician, reduces efficiency, and can be detrimental to the quality of care delivered. 
  • Safety Concerns: Misinterpretation of non-standard codes and inaccurate or incomplete medical data can lead to incorrect diagnoses, inappropriate treatments, delays in treatment, and overall compromised patient safety. These concerns are crucial in an industry where precision can mean life or death. 
  • Limited Research Opportunities: With inconsistent coding, potential clinical trial patients may be inappropriately disqualified. This limits researchers’ ability to progress clinical studies and treatment development. 

The Role of Medical Data Standardization 

A fundamental solution to these clinical challenges is medical data standardization. Standardization involves establishing common languages and coding systems to ensure that healthcare information is uniform, shareable, and easily understood across various platforms and healthcare organizations. 

Healthcare standards organizations, such as HL7 and SNOMED CT, play a pivotal role in creating and maintaining standardized medical coding systems. These organizations work to harmonize and unify the language of healthcare, eliminating local and proprietary codes. The adoption of standardized coding systems can revolutionize the healthcare industry in several ways: 

  • Improved Interoperability: Standardized medical codes make it easier to exchange information between different healthcare entities, ensuring that patient data moves seamlessly across the care continuum. 
  • Enhanced Data Accuracy: Standardized terminologies reduce the likelihood of coding errors, ensuring that medical data is accurate and consistent. 
  • Streamlined Workflow: Clinicians can devote more time to patient care because they won’t have to decipher inconsistent or complex coding systems. 
  • Better Patient Outcomes: With complete and standardized data, clinicians can make well-informed decisions, resulting in more effective treatments and improved patient outcomes. 
  • Data Analytics and Research: Standardized data is crucial for health analytics, epidemiological studies, and clinical research, enabling the discovery of insights that can improve and save lives. 

Hurdles to Achieving Standardization 

While the benefits of medical data standardization are clear, implementing and maintaining these standards is complex and resource intensive.  

To achieve true interoperability and seamless data exchange, as an industry, we must address:  

  • Resistance to Change: Healthcare systems and providers may resist adopting new standards due to the cost and effort required for system updates and staff retraining. 
  • Legacy Systems: Many healthcare organizations operate with legacy systems that need more flexibility to adopt new standards and make it harder to transition to a standardized environment. 
  • Regulatory Hurdles: Regulatory bodies and government agencies must play a role in mandating, regulating, and incentivizing the adoption of standardized coding systems to ensure industry-wide compliance. 
  • Global Considerations: International standardization is essential, with medical data often shared between countries. Coordination at a worldwide level is required to harmonize standards across borders. 

Conclusion 

Medical data standardization is crucial to improving interoperability, data quality, and patient care. Standardization solves the challenges of inconsistent medical codes, providing clinicians with usable data to make informed decisions and deliver high-quality care. While implementing these standards may be challenging, the long-term benefits for healthcare providers and patients are undeniable. As the healthcare industry continues to evolve, prioritizing medical data standardization will be a necessary step in ensuring safe and effective patient care delivery. 

For further reading check out these blogs: 

References 

  • de Mello, B. H., Rigo, S. J., da Costa, C. A., da Rosa Righi, R., Donida, B., Bez, M. R., & Schunke, L. C. (2022). Semantic interoperability in health records standards: a systematic literature review. Health and technology, 12(2), 255-272. 
  • Hripcsak, G., & Albers, D. J. (2013). Next-generation phenotyping of electronic health records. Journal of the American Medical Informatics Association, 20(1), 117-121. 
  •  HIMSS. (2018). Interoperability in Healthcare. Retrieved from https://www.himss.org/resources/interoperability-healthcare
  • Ingenerf, J., Reiner, J., & Seik, B. (2001). Standardized terminological services enabling semantic interoperability between distributed and heterogeneous systems. International journal of medical informatics, 64(2-3), 223-240. 
  • Tapuria, A., Kalra, D., & Kobayashi, S. (2013). Contribution of clinical archetypes, and the challenges, towards achieving semantic interoperability for EHRs. Healthcare informatics research, 19(4), 286-292. 

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